Review, Early Access,
Providing quality care for people with CDKL5 deficiency disorder: A European expert panel opinion on the patient journey
Affiliations
- [1] UCL, Univ Hosp Bristol, Paediat Neurol, London, England [NORA names: United Kingdom; Europe, Non-EU; OECD];
- [2] Univ Hosp Bristol, Bristol, England [NORA names: United Kingdom; Europe, Non-EU; OECD];
- [3] UCL, Univ Hosp Bristol, Paediat Neurol, London, England [NORA names: United Kingdom; Europe, Non-EU; OECD];
- [4] Danish Epilepsy Ctr Filadelfia, Dianalund, Denmark [NORA names: Other Hospitals; Hospital; Denmark; Europe, EU; Nordic; OECD];
- [5] Univ Southern Denmark Fac Hlth Sci, Dept Reg Hlth Res, Odense, Denmark [NORA names: SDU University of Southern Denmark; University; Denmark; Europe, EU; Nordic; OECD];
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Abstract
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Keywords
cyclin-dependent kinase-like 5,
developmental and epileptic encephalopathy,
diagnosis,
multidisciplinary care