open access publication

Article, Early Access, 2024

Opting out of cardiac rehabilitation in local community healthcare services: Patients' perspectives and reflections

JOURNAL OF EVALUATION IN CLINICAL PRACTICE, ISSN 1356-1294, 1356-1294, 10.1111/jep.14015

Contributors

Ravn, Maiken Bay (Corresponding author) [1] [2] [3] Berthelsen, Connie 0000-0003-3158-3301 [4] [5] Maribo, T. 0000-0003-0856-6837 [2] [3] Nielsen, Claus 0000-0002-2467-1103 [2] [3] [6] Pedersen, Charlotte G. [3] Handberg, Charlotte 0000-0002-1378-2449 [3] [7]

Affiliations

  1. [1] Evald Krogs Gade 16A, DK-8000 Aarhus, Denmark
  2. [NORA names: Denmark; Europe, EU; Nordic; OECD];
  3. [2] DEFACTUM Cent Denmark Reg, Aarhus, Denmark
  4. [NORA names: Miscellaneous; Denmark; Europe, EU; Nordic; OECD];
  5. [3] Aarhus Univ Hosp, STENO Diabet Ctr Aarhus, Aarhus, Denmark
  6. [NORA names: AU Aarhus University; University; Denmark; Europe, EU; Nordic; OECD];
  7. [4] Univ Southern Denmark, Dept Reg Hlth Res, Odense, Denmark
  8. [NORA names: SDU University of Southern Denmark; University; Denmark; Europe, EU; Nordic; OECD];
  9. [5] Zealand Univ Hosp, Roskilde, Denmark
  10. [NORA names: Region Zealand; Hospital; Denmark; Europe, EU; Nordic; OECD];

Abstract

RationaleDespite cardiac rehabilitation and medical treatment being integrated parts of the pathway of patients with cardiovascular disease, as well as the well-establish positive effect, cardiac rehabilitation remains underutilised. In recent years, cardiac rehabilitation has increasingly been moved from the hospitals to the community healthcare services. This transition may be challenging for patients with cardiovascular disease.AimTo investigate reflections and perspectives of patients opting out of cardiac rehabilitation in community healthcare services to improve participation and adherence to cardiac rehabilitation in the future.ResultsA total of eight patients opting out of cardiac rehabilitation participated in individual interviews. Opting out of cardiac rehabilitation is defined as never enroled or did not complete cardiac rehabilitation. The Interpretive Description methodology was used in the analysis where two themes and six subthemes were identified: (1) 'Structural and organisational factors' with three subthemes; Being a patient in the healthcare system, Enroling into CR when it is meaningful, and Getting back to work is vital, and (2) 'Patients' internal factors' with three subthemes; Feeling a desire to regain control, Seeing yourself as recovered, and Being aware of own needs. The analysis indicates that patients' decision to opt out of CR was multidimensional and based on a combination of factors.ConclusionEnsuring that the healthcare professionals in the community have sufficient information regarding the patient and a clear communication plan between the healthcare professionals and the patient may reduce the transition causing confusion and frustrations for patients. Incorporating a vocational element in CR and ensuring that employers understand the importance of CR may hamper returning to work as a challenge to CR. Ensuring timely CR referral and enrolment and a transition coordinator may reduce the challenge of patients not viewing CR as meaningful. However, further studies are needed to fully understand how CR could become meaningful for patients opting out of CR.

Keywords

cardiac rehabilitation, healthcare services, interpretive description, patient perspective, qualitative research, transitional care

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